Fight of the Syrinx

Life as I knew it.

The Beginning.

Life is a funny thing. You never really know where you are going to end up. Let me tell you I never imagined my life would be where it is today. I am Ciera Young and over the new few blog posts I will chronicle for you the recent events in my life that have taken me on quite the crazy ride.

After the birth of my daughter, Evey, I started to experience some strange and concerning symptoms. I was getting frequent headaches, numbness in both my hands, and i noticed my hands were losing strength and dexterity. I consulted my PCP but she was unsure what could be causing such strange symptoms and suggested I keep an eye on them. My symptoms progressed to a daily headache, constant numbness in both hands and worsening weakness in both hands. The worsening symptoms, caused me to switch my job as a nursing assistant to a coordinator position for the wound/ostomy clinic. My primary care doctor then referred me to a neurologist. She was still perplexed as to why an otherwise healthy women would be experiencing such interesting symptoms.

The Testing Begins.

From the start of my first appointment my neurologist was intrigued by the odd symptoms I was experiencing and immediately tested me for carpal tunnel. When the test proved to be negative, he tested my reflexes and strength which showed a significant weakness in both hands and diminished reflexes as well.  With this information my neurologist ordered a MRI of the brain, cervical, thoracic, and lumbar spine. My neurologist told me he feared the cause of my symptoms was Multiple Sclerosis. To say I was freaked out was an understatement! I was a mess. So many thought were flooding through my head; How will I work, take care of my kids, live a long happy life with my husband?


My Syrinx is circled here in my MRI from August 2016.

A few weeks later I endured the 2 hour long MRI (with the help of Xanax, I am extremely claustrophobic). It only took a few days for my neurologist to call me back with the results. I did not have MS!!! I was over the moon happy! In fact I think I even did a happy dance. But then my Dr gave me the bad news. I had a syringomyelia, or syrinx for short, at my C6-C7 vertabrea. I had no idea what this was or what it meant for me. A syrinx or syringomyelia, is a fluid filled cavity or space inside the spinal cord. They are pretty rare and normally are found in people with trauma to the spine or from a a malformation of the brain stem. I have neither of these usual causes. If you would like to learn more abut syringomyelia Click Here.  This was the beginning of 2016 and this is where my journey begins.

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